by Darcy Leech
When Darcy Leech was three years old, her baby brother was born, and the course of her life and that of her family was changed forever. Dustin was diagnosed with congenital myotonic muscular dystrophy – or MMD – inherited from his and Darcy’s mother, who didn’t know that she had the adult onset kind of MMD until then. MMD is terminal – it causes progressive weakening of the muscles and the body until it can no longer support life, and there is no cure.
Read more, including an interview with the author, here.